Research has found that people living with dementia and carers experienced high levels of internalised stigma, related to negative public attitudes, which were associated with high levels of isolation, health system unpreparedness and limited access to support in South Africa. The paper was written by STRiDE colleagues, Roxanne Jacobs, Marguerite Schneider, Nicolas Farina, Petra du Toit and Sara Evans-Lacko, and was published in Ageing & Society this week.

Stigma and discrimination in relation to dementia has a range of implications for people living with dementia and their families worldwide, including help-seeking, quality of life, social rejection and isolation. Few studies consider the perceptions and stigma towards dementia from multiple perspectives, such as people living with dementia, carers, general public and health-care workers. South Africa has limited evidence on the stigmatisation of people living with dementia, with responses to people living with dementia being driven by poor understanding of the condition, cultural beliefs about causes and social interaction problems associated with memory and cognitive impairment.

The research explored the experiences of stigma among people living with dementia and their carers through understanding their own knowledge, attitudes and beliefs as well as those of the public and health-care workers.

Qualitative data (N = 52) were collected across two provinces and in four languages (English, Afrikaans, Sesotho and isiZulu), with semi-structured interviews and focus groups with the following stakeholder groups: people living with dementia and their carers, the general public and health-care workers. Inductive thematic analysis generated themes across stakeholder groups.

Full paper:

Jacobs R, Schneider M, Farina N, du Toit P, Evans-Lacko S (2022) Stigma and its implications for dementia in South Africa: a multi-stakeholder exploratory study, Ageing and Society. https://doi.org/10.1017/S0144686X2200040X