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We have identified one peer-reviewed study on the burden carers of people with dementia experience (Rosas-Carrasco et al., 2014). As in other studies on informal care in Mexico, they found that providing care for someone with dementia has a negative impact by increasing risk of burden. Results showed that variables relating to the person with dementia have a greater impact on caregiver burden than caregiver-associated variables. Specifically, dysexecutive syndrome (disruption of executive function, closely related to frontal lobe damage, encompasses cognitive, emotional, and behavioural symptoms), sleep disorders and low educational attainment in the person with dementia were associated to a higher level of caregiver burden, while for the carers, the only factor that showed a higher risk or burden was for those with higher depressive symptoms.

References:

Rosas-Carrasco, O., Guerra-Silla, M. G., Torres-Arreola, L. P., García-Peña, C., Escamilla-Jiménez C.I, & González-González, C. (2014). Caregiver burden of Mexican dementia patients: The role of dysexecutive syndrome, sleep disorders, schooling and caregiver depression. Geriatrics & Gerontology International, 14(1), 146–152. https://doi.org/10.1111/ggi.12072

While not specific to dementia, the NZ Longitudinal study of ageing (NZLSA) surveyed a representative sample of ~3000 of 50-84yr olds and showed carers reported poorer mental health, with an increasing burden of care associated with poorer physical health.

The impact of unpaid care on employment and social protection uptake is outlined earlier in this section (Alpass et al., 2014).

References:

Alpass F, Keeling S, Pond R. (2014). The New Zealand Longitudinal Study of Ageing summary report: Caregiving 2014. Available from: https://www.massey.ac.nz/massey/fms/Colleges/College%20of%20Humanities%20and%20Social%20Sciences/Psychology/HART/publications/reports/Caregiving_NZLSA_2014.pdf?1F25ED5CDD43EFD9D5B694DCDD702858.