DESK REVIEWS | How many people with dementia and their carers are served by NGOs?

DESK REVIEW | How many people with dementia and their carers are served by NGOs?

The NGOs in Brazil should provide services to people of all social classes and educational levels. However, the majority of people who are currently supported by the associations have average educational attainment (>8 years of education), are from middle class, and are predominantly from urban areas. The NGOs provide a lot of information, in different ways, and use a variety of different media which can be useful for people despite their educational and economic status. Because of the diversified dissemination tools, it is difficult to estimate the exact number of individuals served. However, media engagement is usually high, and the on-site raising awareness activities reach approximately twenty thousand people a year.

According to information posted on Alzheimer’s Indonesia’s website and social media, as of 2018 they have held 169 caregiver meetings and 225 events of awareness raising and risk reduction activities. This has reached 2,500 people with dementia and 5,000 carers across Indonesia over the whole year (Alzheimer’s Indonesia, 2019b). Although no specific information could be found about the characteristics of people with dementia and their caregivers who access the organisation’s services, in general, the organisation chapters are based in urban areas (Alzheimer’s Indonesia, 2019b).


Alzheimer’s Indonesia. (2019b). Tentang Alzheimer Indonesia.

Those that receive these services are mostly those with caregivers who are educated and, because of the location of the organisation, are predominantly living in the capital.

No systematic data is gathered, and therefore this is unknown. A first survey of carers was developed in 2018 by the National Association of Dementia Specialists with the aim of generating a profile (quantitative survey) of carers in the country. The survey was sent locally to all associations and to specialists in the private sector so they could distribute and gather the data within their participants/patients. However, no publications of their results are available.