No. However, FEBRAZ and local associations are now being involved in the dementia policy development as part of STRiDE activities.

No. There is no evidence showing that the HKADA has been involved in the policy development related to dementia in Hong Kong.

ARDSI developed the Dementia India Report in 2010 (ARDSI, 2010), the Dementia India Strategy report in 2018 (ARDSI, 2018), and Dementia in India Report in 2020 (Kumar CST et al, 2019). The 2018 Dementia India Strategy Report was submitted to the Ministry of Health and Family Welfare (MoHFW) (ARDSI, 2018).

References:

Alzheimer’s and Related Disorders Society of India. (2010). THE DEMENTIA INDIA REPORT 2010: Prevalence, impact, cost and services for dementia. New Delhi. Available from: https://ardsi.org/pdf/annual%20report.pdf

Alzheimer’s and Related Disorders Society of India. (2018). Dementia India Strategy Report.  Alzheimer Disease International. Available from https://ardsi.org/pdf/Dementia%20India%20Strategy%20Report%202018.pdf

Kumar CTS, Shaji KS, Varghese M, Nair MKC (Eds) Dementia in India 2020. Cochin: Alzheimer’s and Related Disorders Society of India (ARDSI), Cochin Chapter, 2019. Available from: https://dementiacarenotes.in/dcnfiles/Dementia-in-India-2020.pdf

The organisation has worked closely with the government on accelerating the launch of the National Dementia Policy in 2016. It has also been involved in the development of a national guideline on dementia diagnosis and management in the primary care which is currently being drafted by the Ministry of Health since 2016.

No data has been sourced, as there is no dementia-specific policy, and the only dementia-specific NGO does not have a national office.

Through the STRiDE project, ADOK contributed to the National Dementia Plan (currently under development) by the Ministry of Health, Africa Mental Health Research and Training Foundation, and ADOK (London School of Economics (LSE), 2018; C. Musyimi et al., 2019).

References:

London School of Economics (LSE). (2018). Strengthening Responses to Dementia in Developing Countries (STRiDE). https://www.lse.ac.uk/cpec/research/projects/dementia/stride

Musyimi, C., Mutunga, E., & Ndetei, D. (2019). Stigma and dementia care in Kenya: Strengthening Responses to Dementia in Developing Countries (STRiDE) Project. In World Alzheimer Report 2019: Attitudes to dementia (pp. 121–122). London, UK: Alzheimer’s Disease International. https://www.alzint.org/u/WorldAlzheimerReport2019.pdf

Yes. FEDMA was involved in the process of development and publication of the National Alzheimer Plan.

Yes. Both Alzheimer’s NZ and Dementia NZ have been involved in many policy developments related to dementia. Most recently, they have been involved in the development of the Dementia Action Plan 2020-2025 (Mate Wareware Advisory Ropu, et al., 2021). Alzheimer’s NZ also had input into the NZ Dementia Framework (Ministry of Health, 2013).

Alzheimer’s NZ has provided submissions on a range of other issues including the Health and Disability Review, The End-of-Life Choice Bill, and the Government inquiry into mental health and addiction (Alzheimer’s NZ, 2021).

References:

Alzheimer’s NZ. (2021). Advocacy. Available from: https://www.alzheimers.org.nz/our-voice/policy-documents-and-submissions.

Mate Wareware Advisory Ropu, et al., (2021). Improving Dementia Mate Wareware Services in Aotearoa New Zealand: Action Plan. Available from: https://cdn.alzheimers.org.nz/wp-content/uploads/2021/09/Dementia-Mateware-Action-Plan.pdf

Ministry of Health. (2013). New Zealand Framework for Dementia Care. Wellington Ministry of Health.

There is no dementia-specific policy in South Africa. However, NGOs are involved in advocacy work and policy reform. For example, Dementia-SA (NGO) has contributed to the development of the White paper on Social Development and actively working with the DSD to acknowledge dementia as a disability, as well as collaborating with the South African Law Reform Commission to address the concerns around power of attorney (described under Part 4).