DESK REVIEWS | Are family and other unpaid carers recognised/registered as part of dementia diagnostic services?

DESK REVIEW | Are family and other unpaid carers recognised/registered as part of dementia diagnostic services?

PERDOSSI’s national clinical guideline takes into account the family members’ description of symptoms of the person suspected with dementia (PERDOSSI, 2015). The clinical guideline also considers family history of dementia in screening and diagnosing possible people with dementia. However, in the current national action plan for dementia, caregivers are not recognised at diagnosis stage (Ministry of Health Republic of Indonesia, 2015b). We could not identify any further information.


Ministry of Health Republic of Indonesia. (2015b). National Strategy: Management of Alzheimer and Other Dementia Diseases: Towards Healthy and Productive Older Persons. Ministry of Health Republic of Indonesia.

PERDOSSI. (2015). Panduan Praktik Klinik: Diagnosis dan Penatalaksanaan Demensia. PERDOSSI.

Family members are neither registered nor recognized as part of dementia diagnostic services. However, their role in terms of responsibility to their family member with care needs is recognized in the care and protection of older members of society bill, 2018; PART III 59(f) which states that “Pursuant to Article 57 of the Constitution, every older member of society has the right to receive reasonable care, assistance and protection from their family and the State” (Republic of Kenya, 2018b).


Republic of Kenya. (2018b, June). The Care and Protection of Older Members of Society Bill, 2018. Kenya Gazette Supplement No. 73 (Senate Bills No. 17), pp. 333–363. Nairobi, Kenya.

Unpaid carers are not recognised or registered as part of any service, whether they are caring for someone with dementia, with any other chronic disease or disability.

Family and other unpaid carers are increasingly recognised in South Africa as a central base of care-provision for older persons (Sevenhuijsen et al., 2003). The Older Persons Act (no.13 of 2006) calls for the registration of all home-based care services with the Department of Social Development. However, these are not formally recognised as part of dementia-specific diagnostic services.


Sevenhuijsen, S., Bozalek, V., Gouws, A. and Minnaar-Mcdonald, M. (2003). South African social welfare policy: An analysis using the ethic of care. Critical Social Policy, 23(3), 299–321.