There is no such type of information, specifically for dementia. In Brazil, we have the Datasus, a huge public dataset with information regarding health care in general, that includes mortality information on Alzheimer’s disease. There is also the National Health Survey (PNS, in Portuguese, its first edition was in 2013) which is planned to happen every five years as a population-based survey where part of the data will be followed longitudinally.

Data from these research datasets can help to analyse the performance of the health system based on availability and accessibility of services, frequency of consultations etc. However, there is lack of data regarding dementia, specifically. Based solely on these surveys, not much is known about epidemiology, challenges, and healthcare services provided for and used by people living with dementia and their carers. Health Services research is a weak area of research in Brazil.