11.04. Evidence gaps | Brazil

08 Apr 2022

There is no official community-friendly document about dementia prevention and risk reduction.
There is a lack of information systems for monitoring dementia. For instance: there is no monitoring of the number of people living with dementia by the Ministry of Health, neither by other ministries/department nor research-led institutions nor non-governmental organizations.
There is lack of data on the proportion of the population that incurs out-of-pocket expenditure when purchasing long-term care services, the amounts of out-of-pocket expenditure on LTC and on the numbers of people incurring catastrophic levels of out-of-pocket expenditure.
There is lack of data on the current incidence of dementia by region, sex, ethnicity, etc. There is no data on the YLL, YLD, DALY with dementia in Brazil, regarding the average life expectancy of people living with dementia, the average age of dementia onset in Brazil, and the prevalence/incidence of subgroups with specific dementias, e.g., HIV-dementia.
There are no public campaigns specifically to reduce risk of dementia.
There is no information about the number of people who receive community-based care.
No current and precise number of residential long-term care facilities and users in Brazil are available.
There is not enough data on social demographic conditions of informal workers in dementia.
Very little involvement of people living with dementia in the research development process.