DESK REVIEWS | 07.02.02.08. Are there any costs associated with accessing services provided by NGOs for people living with dementia and their carers/families?

DESK REVIEW | 07.02.02.08. Are there any costs associated with accessing services provided by NGOs for people living with dementia and their carers/families?

No, there is no associated cost.

Full-time dementia day-care and residential care homes do charge for their services including organisations like ARDSI and NMT. Although subsidised rates are offered to lower-socioeconomic groups.

There is no information on payment for accessing services for people with dementia or their carers. However, Alzheimer’s Indonesia sells various merchandise such as books and stationeries to raise funds for the operational costs of the provided services (https://store.alzi.or.id/product). We have learnt informally that ALZI is testing a new program called ‘care navigator’ which provides online support to family carers by connecting them to experts who can help them address problems they are facing at home, such as behavioural and psychological symptoms of dementia (BPSD), combined with education sessions on dementia care skills. One session costs about IDR 500,000 (approximately USD 30, rate as of July 2020), which is put towards the operational costs of the programme.

The services provided by Alzheimer’s and Dementia Organization of Kenya are free.

While some services such as support groups are mostly free of charge or they may ask for small fees or “recovery” costs, all-day care centres charge a fee as well as care homes given that they are private and they make up most of their income to be then used for carers salaries, meals, etc., provided by them.

Information services (e.g., medical, legal) and joining local support groups are usually free. However, where other services like respite care, home-based care, etc. are needed, these are sourced at a cost to the family.