DESK REVIEWS | 07.02.02.04. What dementia-specific activities and/or services does the association provide?

DESK REVIEW | 07.02.02.04. What dementia-specific activities and/or services does the association provide?

Awareness campaigns, home care services, training and support for carers, training for healthcare professionals and community health agents, activities for people living with dementia.

All ARDSI chapters run in their own capacity following basic guidelines from the head office. The organisation carries out dementia awareness and anti-stigma campaigns throughout the year. Particularly during World Alzheimer’s month in September, the different chapters conduct several public events. The ARDSI also provides a few dementia-related services to support caregivers and persons with dementia. Some of the chapters run day-care/activity centres for people with dementia as a social service for minimal charges (charges are only to cover operational costs). The organisation also conducts dementia research and holds an annual conference.

Table 7.3 List of activity centres/day cares/ institutions run by each of the ARDSI chapters.

Serial No. Services provided by ARDSI chapters City
1. ARDSI Cochin Harmony Home, Cochin
2.

 

ARDSI Comprehensive Dementia Day Care Centre, Cochin
3. Dementia Respite Care Centre Thrissur
4. ARDSI Malabar Harmony Home Kozhikode
5. Full Time Dementia Care Centre Thiruvananthapuram
6 Dementia Day Care Centre Kolkata
7 Dementia Day Care Centre New Delhi
8 Dementia Day Care Centre and activity centre Hyderabad
9 Dementia day care centre Guwahati
10 KSID SMRUTHIPADHAM Day Care centre, Kunnamkulam
11 KSID SMRUTHIPADHAM Full time care centre, Ernakulam
12 Dementia Day Care centre, SMRITIVISHWAM Mumbai

 

The association provides:

  • Caregivers meetings (monthly in Jakarta, less often in the regional chapters),
  • Education sessions,
  • Workshops on Dementia Care Skills.

ADOK provides the following services (Alzheimer’s & Dementia Organization Kenya, 2019):

  • Care giver training: with a limited number of trained doctors and effective patient-care options, ADOK provides training on:
    1. Understanding Dementia,
    2. Understanding Alzheimer’s,
    3. Effectively communicating with an Alzheimer’s patient,
    4. Dealing with care giver burn out,
    5. Dealing with behavior change (aggression),
    6. Safety.
  • Support groups: Through monthly support group meetings, caregivers of persons with dementia meet and talk about their experiences in providing care to persons with dementia while giving each other support.
  • Research and advocacy: ADOK conducts advocacy in the media, churches, and among community health workers.
References:

Alzheimer’s & Dementia Organization Kenya (ADOK). (2019). Training. https://alzkenya.org/wp-content/uploads/2019/08/ADOK_Newsletter.pdf

Currently FEDMA has a help line providing general information and orientation services. All its state-level affiliates offer diverse services such as day care, carer training and general information on dementia and care recommendations for carers. At national level there are currently 21 associations that are part of FEDMA. Most of them provide support group sessions, general information on dementia and care for people with dementia. Support groups are usually quite diverse depending on who delivers them: geriatricians, nurse, occupational therapist, psychologist, among others.

  • Support groups for persons living with dementia and their carers and families;
  • Information, education, and training of carers/families;
  • Home carers and nursing agencies;
  • Connecting families and persons living with dementia with affiliate members who can provide dementia-specific services.