DESK REVIEWS | Improved monitoring or information systems for dementia

DESK REVIEW | Improved monitoring or information systems for dementia

The Law Project 4364/2020 (if approved) currently states that all people with dementia should be confidentially registered in an information system from SUS.

The Elderly Services Programme Plan (ESPP) proposes the set-up of a real-time vacancy information system and district-based pre-registration system to reduce the barriers concerning service utilisation and to facilitate timely access to services, especially for respite and emergency placement services (Working Group on Elderly Services Programme Plan, 2017, p. 24). The plan also proposes two recommendations on improving the information systems for elderly care, including dementia.

  • “Recommendation 18a – An integrated service provider interface with the Long Term Care Services Delivery System (LDS) built on the LDS database with enhanced Standardised Care Need Assessment Mechanism for Elderly Services (SCNAMES) functions, is to be explored” (Working Group on Elderly Services Programme Plan, 2017, p. 41).
  • “Recommendation 18c – Use of Information and Communication Technology (ICT) should be expanded to enhance the quality of care delivery” (Working Group on Elderly Services Programme Plan, 2017, p. 42).

Working Group on Elderly Services Programme Plan, Elderly Commission of Government of Hong Kong SAR,. (2017). Elderly Services Programme Plan. Hong Kong: Elderly Commission of Government HKSAR Retrieved from

The presence of a monitoring/surveillance system is mentioned as one of the indicators for the seventh action step (Ministry of Health Republic of Indonesia, 2015b).


Ministry of Health Republic of Indonesia. (2015b). National Strategy: Management of Alzheimer and Other Dementia Diseases: Towards Healthy and Productive Older Persons. Ministry of Health Republic of Indonesia.

It mentions the need to develop new sources of information for the construction of a permanent epidemiological surveillance system to monitor dementia cases in Mexico as well as the generation of evaluation tools to measure the impact of the implemented actions.

Dementia framework:

The framework outlines clear expectations of local, regional, and DHB governance to develop measurable outcomes of dementia pathways. There is also a specific mention of the need for monitoring and evaluation of developed pathways that are benchmarked both nationally and internationally, identify gaps that need addressing, and that evaluate outcomes from the perspective of people with dementia and their whanau.

Dementia Action Plan

The action areas outlined by the dementia plan include recommendations for monitoring and information systems such as the need to design and roll out agreed national indicators, measures, and standards with clears lines of accountability at DHB, regional and national levels to monitor their implementation.