There has been no document regulating this. Involvement of people with dementia are mostly as research respondents. Indonesia-specific data on the stigma survey conducted by ADI for the World Alzheimer Report 2019 indicated that there is a higher proportion of healthcare practitioners (65.7%) and general public (44.1%) agreeing that people with dementia are perceived as dangerous. The general public’s perception that people living with dementia are impulsive and unpredictable is also widely spread (74.2% respondents from Indonesia, compared to 63.6% overall global). These might be some of the barriers preventing persons with dementia being involved in research development process (STRiDE, n.d.; Alzheimer’s Disease International, 2019). Based on research published so far on interventions for dementia (e.g., CST, dance therapy), the people with dementia were not involved in the development or design process, but as research participants (Astuti, 2019).

References:

Alzheimer’s Disease International. (2019). World Alzheimer Report 2019: Attitudes to Dementia. Alzheimer’s Disease International.

Astuti, R. D. (2019). Can Bali Become a Paradise For Ageing?

STRiDE. (n.d.). Strengthening responses to dementia in developing countries.